Your Soup Served Fresh

Tweet Subscribe to receive your daily serving of Capital Soup. Tweet

News. Views. Unfiltered.

Tweet Submit your news and opinions to Capital Soup free of charge. Tweet

Advertise in the Soup.

Tweet For rates and availability, contact ads@capitalsoup.com. Tweet

Dish it Up.

Tweet Order special services or featured positioning at services@capitalsoup.com. Tweet

Home » Education » Currently Reading:

Jimbo and Candi Fisher’s Kidz1stFund Fights Rare Disease with $1 Million in Donations in Only Second Year

March 12, 2013 Education No Comments

Non-profit continues to fight for a cure for Fanconi anemia.

 

Tallahassee, FL – Florida State head football coach Jimbo Fisher and his wife Candi presented the second Kidz1stFund check in only 19 months to Dr. John Wagner, M.D. and Dr. Margaret L. MacMillan, M.D. co-directors of the Fanconi Anemia Comprehensive Care Clinic at the University of Minnesota Monday evening at a reception at the TCF Bank Stadium in Minneapolis, Minn. Kidz1stFund’s donations to date toward Fanconi anemia research total $1 million.

“FA is our opponent and we will do everything we can to fight this disease head on,” said Jimbo Fisher. “Candi and I knew from the beginning we could make a difference by helping to raise awareness and fund research. Through the generous donors of Kidz1stFund, these million dollars will make a significant difference in the lives of FA patients.”

 

The Fishers created Kidz1stFund after their 7-year old son, Ethan, was diagnosed with the rare blood disorder in 2011. Fanconi anemia is a genetic disease which causes possible birth defects, bone marrow failure and eventually leads to cancer years earlier than the general population. Currently, there is no cure for FA, and yet the Fishers are tirelessly working to help find that cure.

“The world’s first successful cord blood transplant was with an FA patient, and now there have been over 23,000 cord blood transplant performed for a variety of diseases to date,” said Dr. MacMillan. “FA families like the Fishers continue to push for better treatments for this terrible disease, and we hope to one day be able to find that elusive cure for Ethan and the others with FA.”

Kidz1stFund, under the direction of chairwoman, Candi Fisher, made its first pledge of $500,000 in March of 2012 to the University of Minnesota’s Amplatz Children’s Hospital, doubling the university’s research budget for Fanconi anemia.

“We chose the University of Minnesota Amplatz Children’s Hospital because it treats more Fanconi anemia patients needing blood and marrow transplantation than all other hospitals in the country combined,” said Candi Fisher.  “And because, most importantly, their team of doctors gave us hope that a cure would be found.”

###

Kidz1stFund:  Jimbo & Candi Fisher’s Kidz1stFund is dedicated to raising awareness and research dollars for Fanconi anemia, the rare disease that affects their younger son, Ethan.  Dollars raised through generous donations, online contributions, merchandise, and during special events go toward finding better treatments and ultimately a cure for this life threatening disease.

To learn more about the fund and donate to the cause, please visit www.Kidz1stFund.com

SunDeck: What’s A-Twitter in FL Politics

AdvertisementAdvertisementAdvertisementAdvertisement

ADVERTISEMENTS

Sachs Media Group

Florida Sports Fan

Archives

2013 Florida Capitol Press Corps Guide

2013 Florida Capitol Press Corps Guide

Sachs Media Group this week released its annual Capitol Press Corps Guide, the resource to find and connect with reporters who cover Florida from the capital city. The pocket-sized 2013 guide is a listing of all major news outlets in Florida that have capital bureaus, including contact information for individual reporters who cover issues of statewide importance. The 2013 guide includes reporters’ Twitter handles, recognizing the growing importance of social media in reporting. Supplies are limited. To request a hard copy, email herbie@sachsmedia.com.

Florida NewsMakers

Opinion

Understanding Recreational Bag Limits

May 23, 2013

Tweet Understanding recreational Bag Limits By Alan Peirce Fishing can sometimes be famine, but on the days when it is feast, it’s important to know your bag limit, aka the number of fish you can keep and take home for dinner. These limits are a useful tool in helping protect many of our recreationally important [...]

For National Trauma Awareness Month Let’s Agree: All Floridians Deserve Access to Trauma Care

May 21, 2013

Tweet For National Trauma Awareness Month Let’s Agree: All Floridians Deserve Access to Trauma Care By Dr. James M. Hurst May is National Trauma Awareness month, and it finds Florida trying to write a prescription for improving access to trauma care for everyone. As an expert in the field of trauma, I was somewhat encouraged [...]

Rep. Janet Cruz: The News from Cruz

May 14, 2013

Tweet 2013 Session Highlights By Rep. Janet Cruz As I return to District 62 from the 2013 legislative session I wanted to fill you in on some of the issues that we have been working on the past two months that might be of interest to you. Elections Perhaps one of the biggest issues this [...]