FOR IMMEDIATE RELEASE
June 3, 2024
CONTACTS
Gwynne Gonzalez
Office of Representative Kelly Skidmore
561-496-5940
Representative Kelly Skidmore and Leader Fentrice Driskell’s Sickle Cell Bill Signed by the Governor
BOCA RATON, Fla. – Late last week, Governor DeSantis signed HB 7085 sponsored by Representative Kelly Skidmore (D-Boca Raton) and Leader Fentrice Driskell (D-Tampa). This new law creates the Sickle Cell Disease Research and Treatment Grant Program within the Department of Health and expands the existing sickle cell registry to allow adults with sickle cell disease to opt into the registry.
The Office of Minority Health and Health Equity within the Department of Health will award grants to community-based sickle cell disease treatment and research centers to fund the operation of Centers of Excellence for the treatment of sickle cell disease. The centers will also develop the health care workforce that is prepared to address the unique needs of patients with sickle cell disease. Additionally, $10 million in recurring funds for the grant program is included in the House and Senate budget.
“This landmark legislation will directly impact individuals and improve the health and quality of life for those suffering from this painful disease and their families,” stated Representative Skidmore. “Sickle cell disease causes chronic pain and requires specialized treatment that is costly and difficult to access. By passing this legislation and adequately funding it, Florida is acknowledging the critical urgency to provide as many research and treatment options as possible.”
According to a 2023 report by the Florida Agency for Health Care Administration, Florida has an average of 7,000 new cases a year, twice that of the national average. Moreover, the number of people with sickle cell disease enrolled in Florida Medicaid averages 7,328 people per year.
“A lot of these patients will go to the emergency room, and they need treatment for pain. The doctors or their care providers might not recognize why they’re asking for this treatment, and, sometimes, they get treated like drug addicts. I’m very glad that our bill includes an education component that will provide opportunities for community-based sickle cell care providers to educate the doctors and the medical care providers so we can work to provide better care and reduce ER visits,” added Leader Driskell.
The law became effective upon the governor’s signature.
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